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Most people have never heard of Prader-Willi syndrome.
But for the families living it, every decision carries lifelong consequences.
In this episode, I sit down with Alegna Cambra from Supreme Twins Foundation, an organization founded by parents of twin daughters with Prader-Willi syndrome. What began as a personal fight to help their own children has grown into a mission that has already impacted over 10,000 families across Miami.
We talk about:
• What Prader-Willi syndrome actually is
• The daily realities families face that most people never see
• Why housing and long-term planning become critical in adulthood
• How therapy, arts, and education create independence
• The moment the twins stepped on stage and changed everything
• Why their foundation exists and who it helps
This conversation is about more than a diagnosis. It’s about building a future.
If you’re raising a child with Prader-Willi syndrome, or any developmental disability, this episode will help you understand what matters most long-term.
Learn more about Supreme Twins Foundation:
https://www.supremetwins.org
Instagram: @supreme_twins_foundation
📲 If you are a disability family considering relocating to Miami, text me directly at 305.401.6224
Or visit me online: https://miamiautismrealestateagents.com/
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